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Not the week we had hoped for…

Not the week we had hoped for…

 

We began the week excited to finally have Ethan at home from the hospital (Feb 6).  But early in the week Ethan took another turn as his fluids and electrolytes were not balanced.  Unfortunately, after a 5 PM trip to the doctor’s office and 5 hours in the Emergency Department, Ethan was readmitted on Feb 10th. 2015 has not started out as we had expected.  Ethan has now spent 33 out of 44 days at Cincinnati Children’s Hospital Medical Center this year.  When does he get a break? When do we all get a break?

The good news (we guess) is that he was admitted with no surgical needs and is under the care of the Yellow Team (Complex Care).  We are exercising our “HOPE” muscles that he is discharged tomorrow (Feb 14), on Zakary’s birthday – Happy Birthday, Zak!  He is celebrating with 1,000+ NFTY “friends” from across the USA at NFTY Convention in Atlanta this weekend.  Zak continues to be the “ROCK” of the family, rising to any challenge or task we ask him to accomplish.  We find it hard to believe that 18 years have flown by since Zakary’s birth in Sacramento, California.

Time is a funny thing.  Sometimes it flies by at the speed of light and at other times crawls at the pace of a tortoise.  These accumulated 33 days of hospitalization have gone by painfully slow.  We look forward to getting back to a routine of out-patient therapies, school and doctor appointments—the regular drumbeat of Ethan’s rehabilitation program—as well as keeping up with Zakary and Elyse’s busy lives.

Stay warm; hug a loved one – Happy Valentine’s Day – Happy Birthday, Zak.

Shabbat Shalom,

Alexia and Scott

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12 Comments on "Not the week we had hoped for…"

  • Dave Davis says

    Happy Birthday Zak!

  • RJ Reynolds says

    Happy Birthday Zak! 

  • Kelli Watts says

    Happy Birthday Zak. And Happy Valentine's Day to all.  Sending love and prayers that Ethan is released. You are right Lecky, its time for a break. Love, Kelli

  • The Ziegelman's says

    Happy Birthday Zak! And Happy Love Day Alexia & Scott  Ethan is a very lucky and child to have you as parents. Cindy

  • Jen says

    Continued thoughts and prayers for healing, continued strength, more light than darkness

     

  • Sari Sichel says

    Zak, sending you lots of prayers for an early release tomorrow so that you can celebrate your special day with many of your friends and family. Shabbat Shalom    

  • Diana says

    Sending love and light your way. Your entire family has strength, spirit and resilience that lifts us all. Xo

  • Cathy says

    I've been following Ethan's story since this tragic event occurred.  I keep Ethan in my Misheberach prayers for continued healing, and for your family for continued strength.  

    Happy birthday to Zak as well!  He sounds like a true mensch! 

     

     

  • Kathy & Alan Ehrlich says

    Happy Birthday Zak :-)

  • Adrienne Davidson says

    Thanks for keeping us updated. It allows us to focus our prayers where needed. I sincerely hope that you can find a middle ground between Zak time and Ethan time!  Surely the average is the ideal pace.  ;-)  Much love to you all! May this be a short hospital visit. See you Tuesday.    

  • Susan B says

    I'm sorry to hear Ethan's back at the hospital, and hope for a quick turnaround back to home!  Sending love and more love this Valentine's Day weekend.  Happy birthday to Zak!  xoxo

  • Ali Reich says

    Wishing you all warmth and better news in the weeks ahead…

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