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Surviving on Low Power Mode

Surviving on Low Power Mode

Surviving on Low Power Mode

 

I recently noticed a feature on my phone when the battery is getting very low. An icon pops up giving me the option of conserving energy by hitting the button “Low Power Mode.” This is a fitting analogy for our lives in the past couple of weeks (or months, or years). I found myself hitting this button several times in recent weeks, as I saw this as the best way to proceed through the monotonous days in the hospital. For the most part, Scott and I tackled this hospitalization by dividing days and nights. I spent the days, he spent the nights (even after his long days at work). When I would go home in the evenings, or for Scott, on the weekends, it was to spend some precious moments with Elyse, catch a few hours of much-needed sleep, get up and head back down to the hospital.

 

Overall, this hospitalization went more smoothly from a post-operative perspective, and we saw Ethan’s entire system respond and bounce back much faster than with previous surgeries. We caught up with some of our favorite hospital nurses, doctors, and support staff, and even high-fived ourselves for remaining calm, present and focused, even in the face of a fourth abdominal surgery. At the end of two weeks, we were well-prepared and ready to bring Ethan home to continue his healing.

 

And then the other shoe dropped.

 

Somewhere between hospital and home, while transferring Ethan into his wheelchair, his leg caught in a precarious position and he let out a tremendous scream. The pain and discomfort he expressed throughout that first night at home led us to believe that something bad had happened. An x-ray the next morning confirmed the unfortunate truth—Ethan had slightly fractured his femur, just above the knee. We came home with Ethan’s leg in a quasi-cast—hard on the bottom, surrounded in an ace bandage—which will remain in place for at least four weeks.

 

We are feeling one snowflake short of an avalanche.

 

And so we will remain, for the time being, on low power mode. The mounting pile of mail, the growing stacks of miscellaneous papers, clothes, returning phone calls, texts, emails, etc. will have to wait. These things will still be here when we resurface, and that is just fine with me. For those local friends who have answered the call for Lotsa Helping Hands, thank you. For those of you who keep our family in your thoughts and prayers, thank you. For those of you who take the time to read our updates, thank you.

 

Let’s hope for an early spring,

Alexia and Scott

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17 Comments on "Surviving on Low Power Mode"

  • Susan Bernardo says

    Thinking of you tonight and sending love, light and peace!  xoxo

  • Natasha Abraham says

    Thinking of you every day. I hope Ethan is healing well and that you are as well. We miss you. You and Scott are doing a tremendous job taking care of your family. Sending alotta love to help recharge.

    With Love, Natasha

  • Miriam Karp says

    Sending love and energy and prayers to you all. Your fortitude to even sit and compose such thoughts, is beyond. Wishing you energy and blessings above and beyond!

  • Adrienne Davidson says

    No way!! Geez you guys just can't catch a break. Oh darn… that wasn't meant as some sort of twisted pun… but I'll leave it so my post stands out I guess. I hope the cast is keeping him pain free. He's such a fighter! Much love to you all. I hope Scott, that you are sleeping a whole lot better in your own bed!     

  • Gary & Natasha says

    We're praying for Ethan's leg to heal quickly, and sending you & Scott our love from California.  

     

  • Mary Jayne Wint says

    You don't know me (I am Kari Wint's mother-in-law), but I want you to know that I pray every day for Ethan and your family.  You truly have to be the strongest people I have ever not met.  One of these days, the good Lord will say these folks have had enough and things will take a drastic turn for the better.  I pray that you can hang in there and one day you will all be rewarded for you strength, love, and perseverance with your beautiful son.  God bless you all.

  • Michael and Bridget Katchman says

     

    WE have you in our prayers and send positive thoughts to Ethan and your family!! 

     

     

     

     

     

     

  • Susan Bernardo says

    Even at "low power mode", you are full-powered grace and love and responsiveness to your family's needs, and I can see you are surrounded by a wonderful community and lots of helpers.    Yes, the mundane tasks can be on hold – laundry and all that other stuff will still be there!!  wishing you sweet sleep and moments of comfort and joy, some time in nature or doing art, music (and maybe a nice long bubble bath!) to refuel you.  My mantra when I am feeling overwhelmed is "Relax, Receive, Radiate" or I remind myself to "put on my own oxygen mask first" ! Breathe and float.  Sending love xoxo

  • Amy Bennett says

    I think of you everyday. Sending love to you all. 

  • Miriam Lichstein says

    We continue to think about you, Ethan and your whole family. -The Lichstein family

  • Maggie and Carl says

     

    Alexia and Scott,

    We are so sorry to hear about Ethan's leg.  You all have to be both emotionally and physically so spent and we can't imagine how you are managing everything.  Please know that you are in our prayers and we are hoping for a break from the hospital for Ethan for a long time.

     

  • Stephanie and Steve Wiper says

    Sending a great big group hug! We love you,

    -Steve, Steph, Mac and Kate

     

  • Debi Varland says

    Alexia and Scott,

    We so much want you all to be able to wake up from this bad dream/nightmare. You all have had to deal with so much, so so much. You continue to be in our thoughts daily. I recently saw your Team Ethan basket while I was at Children's. It   was so inspirational because it stands for immense and intense love and devotion and family and courage… But also struggle and difficulty and enough. We continue to send you positive energy. Love, Debi, Joel, Carly, Toby, Oliver & Perrin 

  • Wendy Rosen says

    Wishing more than anything that your family gets back to a fully charged battery. No avalanches. Love you guys.

  • Deborah Gonzalez says

    Always in our prayers. All of Mosaic Law hears his name on Shabbat. Oy va voy. May you all have strength and healing. 

  • Jane Snell Copes says

    Arms around you every day.

  • Lucy May says

    Oh Alexia and Scott – I am so sorry to hear about Ethan's leg. I know he is a strong young man from a strong family, but enough is enough! Please know that my family and I are thinking of you and trying to send good energy and healing thoughts Ethan's way.

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