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Ethan Update – A Flicker of Light at the End of the Tunnel

Ethan Update – A Flicker of Light at the End of the Tunnel

Ethan is finishing Day 11 of his most recent hospitalization. The severe pain has been successfully managed and he is weaning off the pain med combination that delivered the much-needed relief. As good as this news is, there are challenges still ahead before discharge. Ethan needs to prove he can receive nutrition and hydration through his GI System – typically not an easy task for him. The other challenge is more mental. Given we do not know exactly what caused Ethan’s severe pain event on April 27, we cannot be confident it will not return. Add this to a long list of potential issues that could send Ethan back to the hospital at any time. Not an easy way to live for Ethan or for us.
This will be a very busy week – Ethan will remain at Cincinnati Children’s Hospital until he demonstrates GI success, Alexia will pick up Zakary who is finishing his sophomore year at Washington University in St. Louis, and Scott and Elyse will try to have a typical/not-typical week at home. We will all juggle our commitments at work, home and the hospital.
With so many unknowns, this current admission has been very challenging emotionally. Not understanding the source of Ethan’s severe pain is scary. It creates a lot of worry. As of today, Ethan has spent a total of 373 days in the hospital, and counting, since his injury on June 29, 2013…that’s 26.5%, a statistic that is unimaginable!
We hope the flicker of light we see grows stronger this week. We all need Ethan to get well and come home.
Alexia and Scott

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16 Comments on "Ethan Update – A Flicker of Light at the End of the Tunnel"

  • Joey Adler says

    May every day be better than yesterday. 

    Joey Adler

  • Eva Freed says

    Dear Alexia, Scott and children,

    I am following your updates and feel your pain but also admire your strength and join in your hope.

    My partner, Eli, suffered a stroke 2 months ago. He returned home and is doing therapies at Toronto rehab. The progress is steady but slow but we hope for full recovery. His son found this link of a hospital in Israel and I want to share it with you

    http://mobile.mako.co.il/news-channel2/Friday-Newscast-q2_2017/Article-6b3ee40d1364c51004.htm

    Wishing Ethan speedy recovery and return home,

    Love Eva, Eli and family

  • Courtenay says

    Keeping you all in my heart and sending love and healing thoughts your way. Your strength inspires us all.

    xoxo- Courtenay

  • Natasha says

    Dearest Alexia and Scott,

    We are praying that Ethan continues to have relief from the pain he has been having. We hope that you both are able to also get some relief and recharge. You are both amazingly strong and loving. We pray that the light at the end of the tunnel gets brighter each day. We love you!

  • The Varlands says

    We will continue to think of you with the hopes that Ethan finds comfort and less pain. Your whole family is in our hearts. Unimaginable seems the perfect word choice. Thank you for continuing to share your story as we will continue to share our hope and love.

    Debi, Joel, & kids 

  • Michelle Bisno says

    We are all thinking of you in Pittsburgh. Our hearts, thoughts and loving prayers  are with you and the family.  

  • Beth Sherr says

    We are a GUCI family and think of all of you everyday and sending you healing thoughts for Ethan and strength for the family. We are so sorry to hear about this recent hospitalization.  We say a  Refuah Shlema for Ethan all the time.  We wish everyone time to breathe and refresh!

     

  • Helen Dennis says

    Dearest Alexia and Scott. Thoughts and prayers continue to be with Ethan and both of you.  Wishing you continued strength.  With much love and caring, Helen

  • Jane Snell Copes says

    Courage!  Breathe and be.

  • Mark S. Anshan says

    I am following your messages and continuing with prayers for Ethan and the family.  Thinking of you.  

  • Rebecca Goldwasser says

    I hope Ethan gets well fast.  You will be in my thoughts and prayers.

    Rebecca

  • Ronna Schneider says

    We pray for Ethan and the entire Kadish family every day!

  • Norm Fassler-Katz says

    Wishing you all continued strength facing these many challenges  wish I lived closer

  • Lyn and Harry says

    We have never met but are in the same family. The GUCI family. When we pass the NW corner of I-465, we think of your family. When there is thunder in the distance, we think of your family. We cannot change what was but what is has changed so many. May G-d guide the caretakers to find the source of the pain and may you continue to have hope. 

  • Sonya says

    Tell Ethan we miss him at morning movement and hope to see him soon. 

  • Michal says

    Refuah shelema Amen 

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