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Ethan’s Future Health Care

NOTE: Please share this post broadly and contact your representatives in Congress. Each one of us has a voice, a story to share and a vote. This is our story…

Scared. Shocked. Angry. Confused.

We did not want this, We did not ask for this “opportunity;” we did not do anything wrong to deserve this AND we will not run from our obligations as parents to care for our child. However, we cannot afford to cover all of Ethan’s health care costs without help …

24 karat Anniversary

Twenty-four years ago, my amazingly talented sister, Suzanne, of blessed memory, sang me down the aisle to this beautiful song. With my mom on one side and my dad on the other, they escorted me to my beloved, and underneath the chuppah we created our first “home,” promising to love and protect each other. Through the years we have changed homes and cities, added furry friends, and opened our hearts to three children. We have balanced each other and remained in each other’s corner through …

Ethan Update – A Flicker of Light at the End of the Tunnel

Ethan is finishing Day 11 of his most recent hospitalization. The severe pain has been successfully managed and he is weaning off the pain med combination that delivered the much-needed relief. As good as this news is, there are challenges still ahead before discharge. Ethan needs to prove he can receive nutrition and hydration through his GI System – typically not an easy task for him. The other challenge is more mental. Given we do not know exactly what caused Ethan’s severe pain event on …

UPDATE

Dear Team Ethan,

 

Nothing is normal anymore. Nothing seems to come natural or easy. We are tired. It has become very difficult to post updates on Ethan. Please know that all of your support is appreciated – your prayers, your love and your contributions to Help Hope Live.

 

It has been a long time since we have posted as we try to stay positive and forward thinking, however, the past three weeks have been incredibly difficult for our family and for …

The 8th Night For Ethan

As we shine our lights toward a new year for Ethan, we mark the end of Chanukah with a gift of love. We pray that the new year brings a year of love and a year of support.

http://bit.ly/8thnightforethan   #8thNightForEthan