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Ethan Update – A Flicker of Light at the End of the Tunnel

Ethan is finishing Day 11 of his most recent hospitalization. The severe pain has been successfully managed and he is weaning off the pain med combination that delivered the much-needed relief. As good as this news is, there are challenges still ahead before discharge. Ethan needs to prove he can receive nutrition and hydration through his GI System – typically not an easy task for him. The other challenge is more mental. Given we do not know exactly what caused Ethan’s severe pain event on …


Dear Team Ethan,


Nothing is normal anymore. Nothing seems to come natural or easy. We are tired. It has become very difficult to post updates on Ethan. Please know that all of your support is appreciated – your prayers, your love and your contributions to Help Hope Live.


It has been a long time since we have posted as we try to stay positive and forward thinking, however, the past three weeks have been incredibly difficult for our family and for …

The 8th Night For Ethan

As we shine our lights toward a new year for Ethan, we mark the end of Chanukah with a gift of love. We pray that the new year brings a year of love and a year of support.   #8thNightForEthan



The Cold Hard Facts


The Cold Hard Facts


We are now almost 3.5 years post Ethan’s injury. We are enormously grateful for all of the love and support we receive from our family, our community and Team Ethan. We wish we could give each one of you a personal THANK YOU for all that you have done.

As we approach the 4th Annual Eighth Night for Ethan, we wanted to summarize why we keep pursuing these fundraising events – not by choice but by necessity. 

Ethan is covered by three different health insurance policies …

Great memories shared—Great memories created

Sometimes making a decision gets compounded by multiple factors. This happened to us in the days leading to past weekend and fortunately everything ended up very well.

Last year, Scott and I attended our first Parents Weekend at Washington University—we got to visit Zakary while learning more about his campus, meeting his friends and taking him out to wonderful eateries around the city. After that successful weekend, we set our sights to Parents Weekend 2016 and started to hatch a plan. My father, Bill, a graduate …