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New Logo – Same Place – Same Great Care…Here We Go Again.

New Logo – Same Place – Same Great Care…Here We Go Again.

 

New Logo – Same Place – Same Great Care…Here We Go Again

On the evening of Saturday, October 15, Ethan and Scott headed to the Emergency Department (ED) at Cincinnati Children’s Hospital Medical Center (CCHMC) as Ethan presented the same GI issues he has presented in the past.  Ethan’s last GI event which resulted in surgery was some 258 days ago.  

After a flurry of tests, fluid replacement, x-rays and a CT scan, Ethan found his way into the PICU with a UTI and concern for …

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Surviving on Low Power Mode

Surviving on Low Power Mode

Surviving on Low Power Mode

 

I recently noticed a feature on my phone when the battery is getting very low. An icon pops up giving me the option of conserving energy by hitting the button “Low Power Mode.” This is a fitting analogy for our lives in the past couple of weeks (or months, or years). I found myself hitting this button several times in recent weeks, as I saw this as the best way to proceed through the monotonous days in the hospital. For the …

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Ethan Update – Shabbat Shalom – Day 4 post-surgery

Ethan Update – Shabbat Shalom – Day 4 post-surgery

Ethan Update – Shabbat Shalom – Day 4 post-surgery

 

Remember a year ago when there was a debate over some dress going around the internet? Was it white/gold or was it black/blue? Not wanting to re-hash that here, yet this photo reminded me of that. Whether it was a scientific phenomenon or simply individual perception, who knows and who cares? This photo has given me a chance to perceive things in a different way. I am enjoying our “room with a view,” which offers plenty of …

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Ethan Update – Groundhog Day

Ethan Update – Groundhog Day

Surgery Again!

 

Ethan's condition did not improve during the day on Monday. His surgery team grew more concerned as the day went on without showing signs of improvement. So, at 6:45 PM, Monday …

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NOT FUNNY!!

NOT FUNNY!!

 

Last night during Ethan’s evening home PT exercises he broke his left humerus bone. Definitely not humorous. Ethan’s left upper arm (elbow to shoulder) is in a temporary splint for the next five days until he is seen again by the orthopedist to receive his cast. The discussion around the house is what color the cast should be. Elyse votes for purple/pink and Zak says orange/black.

This is not the break we were hoping for.   

Everything with Ethan has just gotten harder…not that it was easy …

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Home – Sweet – Home

Home – Sweet – Home

 

 

Home – Sweet – Home

 

Ethan has set a new record. A personal best of being in the hospital for only 42 hours! Way to go Ethan!

We're looking forward to celebrating Father's Day with Ethan at HOME. The best.

Happy Father's Day to all the fathers out there.

 

 

 

*Photo credit: etsy.com

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A day in the life of Ethan…..

A day in the life of Ethan…..

 

Wait until you get to the exciting part of his day…around 6:45PM.  Sorry in advance for the long post, Ethan lives an active life some days.

Thursday, June 18
7AM – Lindsey, our night nurse, reports Ethan had a great night of sleep.

8AM - Caleb, our day nurse, arrives to take Ethan to his Summer School Program.

8:45AM - Ethan and Caleb head off on the bus.

12:15PM - Ethan and Caleb arrive home. Caleb reports that Ethan enjoyed a lazy day and slept through most of the morning.

5PM - Power at home goes …

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HOME!

HOME!

 

HOME!

'nuff said…

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

* Feature image: from The Arc

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