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Surviving on Low Power Mode

Surviving on Low Power Mode

Surviving on Low Power Mode

 

I recently noticed a feature on my phone when the battery is getting very low. An icon pops up giving me the option of conserving energy by hitting the button “Low Power Mode.” This is a fitting analogy for our lives in the past couple of weeks (or months, or years). I found myself hitting this button several times in recent weeks, as I saw this as the best way to proceed through the monotonous days in the hospital. For the …

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A day in the life of Ethan…..

A day in the life of Ethan…..

 

Wait until you get to the exciting part of his day…around 6:45PM.  Sorry in advance for the long post, Ethan lives an active life some days.

Thursday, June 18
7AM – Lindsey, our night nurse, reports Ethan had a great night of sleep.

8AM - Caleb, our day nurse, arrives to take Ethan to his Summer School Program.

8:45AM - Ethan and Caleb head off on the bus.

12:15PM - Ethan and Caleb arrive home. Caleb reports that Ethan enjoyed a lazy day and slept through most of the morning.

5PM - Power at home goes …

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