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New Logo – Same Place – Same Great Care…Here We Go Again.

New Logo – Same Place – Same Great Care…Here We Go Again.

 

New Logo – Same Place – Same Great Care…Here We Go Again

On the evening of Saturday, October 15, Ethan and Scott headed to the Emergency Department (ED) at Cincinnati Children’s Hospital Medical Center (CCHMC) as Ethan presented the same GI issues he has presented in the past.  Ethan’s last GI event which resulted in surgery was some 258 days ago.  

After a flurry of tests, fluid replacement, x-rays and a CT scan, Ethan found his way into the PICU with a UTI and concern for …

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A day in the life of Ethan…..

A day in the life of Ethan…..

 

Wait until you get to the exciting part of his day…around 6:45PM.  Sorry in advance for the long post, Ethan lives an active life some days.

Thursday, June 18
7AM – Lindsey, our night nurse, reports Ethan had a great night of sleep.

8AM - Caleb, our day nurse, arrives to take Ethan to his Summer School Program.

8:45AM - Ethan and Caleb head off on the bus.

12:15PM - Ethan and Caleb arrive home. Caleb reports that Ethan enjoyed a lazy day and slept through most of the morning.

5PM - Power at home goes …

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Scattered

Scattered

That's the feeling of the day/week/month. We spin in our own circles of work, therapies, doctor visits, school, extra-curricular stuff, etc. At the end of the day we often look to each other and say, "What happened?"
Working with Ethan is physically and mentally challenging and we eagerly collapse into bed each night. Yet we push forward and see that gradually there are some small, noticeable changes. The way that Ethan seems more present at times in conversations; the way he reacts during familiar times, …

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