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Chazak Bracelets

  For information about CHAZAK BRACELETS, contact Amy Bennett at 

chazakbracelets@gmail.com

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UPDATE

UPDATE

Dear Team Ethan,

 

Nothing is normal anymore. Nothing seems to come natural or easy. We are tired. It has become very difficult to post updates on Ethan. Please know that all of your support is appreciated – your prayers, your love and your contributions to Help Hope Live.

 

It has been a long time since we have posted as we try to stay positive and forward thinking, however, the past three weeks have been incredibly difficult for our family and for …

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New Logo – Same Place – Same Great Care…Here We Go Again.

New Logo – Same Place – Same Great Care…Here We Go Again.

 

New Logo – Same Place – Same Great Care…Here We Go Again

On the evening of Saturday, October 15, Ethan and Scott headed to the Emergency Department (ED) at Cincinnati Children’s Hospital Medical Center (CCHMC) as Ethan presented the same GI issues he has presented in the past.  Ethan’s last GI event which resulted in surgery was some 258 days ago.  

After a flurry of tests, fluid replacement, x-rays and a CT scan, Ethan found his way into the PICU with a UTI and concern for …

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We’re Back!

We’re Back!

We’re Back!

 

Dear Wonderful Team Ethan Community,

After spending approximately four months “off the radar” we are now back; refreshed (some days), energized (NOT) and ready to resume sharing our journey. Thank you to so many who have been finding ways to check on us, without directly checking on us. We have officially recharged our batteries and are no longer living our day-to-day life on “Low Power Mode”—reference to our last post on February 19, 2016. In the coming days and weeks, we will share more—there’s a …

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Scattered

Scattered

That's the feeling of the day/week/month. We spin in our own circles of work, therapies, doctor visits, school, extra-curricular stuff, etc. At the end of the day we often look to each other and say, "What happened?"
Working with Ethan is physically and mentally challenging and we eagerly collapse into bed each night. Yet we push forward and see that gradually there are some small, noticeable changes. The way that Ethan seems more present at times in conversations; the way he reacts during familiar times, …

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Finding Strength in Stories

Finding Strength in Stories

 

Have you ever read a book that resonated with you so deeply you couldn’t get it out of your head? I’ve had that experience several times over the years, but I have never felt that a book was written with MY FAMILY’S STORY as the guiding force. On the flight out to California in December I read a tiny blurb about a new children’s book by LeVar Burton (of “Reading Rainbow” and “Roots” fame), poet Susan Schaefer Bernardo and illustrator Courteney Fletcher. I was intrigued …

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